This is the post where I explain a bit more about what I'm going to do through the blog posts and videos (and for those of you who don't like reading much, there's a video as well 👇)
Essentially, I'm here to do two things: give information and give motivation to people who have fibromyalgia, the family and friends of people who have fibro, even the general practitioners and mental health professionals who are trying to treat patients with fibro.
Between April of this year and now, I've spent - best guesstimate - around a hundred hours researching and understanding fibro and chronic fatigue syndrome (CFS). This is one of the blessings of Covid: it gave me the gift of time; time I would never have had to put towards my healing.
Before I go on, it's important that I clarify two things: First, I don't have CFS, it's just that most of the summits and practitioners I've had the fortune of learning from work with the two because they are similar enough on various levels that the interventions are also similar and, in some cases, the same. Second, I'm not cured. I'm on a healing journey. As far as I and the very many practitioners with their decades of experience and research are aware, there is no cure; there are ways to minimize and manage the symptoms. We all keep trying.
I've spent hours upon days attending online summits and reading up on the causes and treatments and interventions and actually testing some of them out on myself with and without the support of various healthcare practitioners.
The people that I've been fortunate enough to listen to and learn from on the summits and through my online research have spent decades researching fibro and CFS, specifically, and working, sometimes exclusively, with fibro and CFS patients.
So, what information, exactly, am I going to share? In no particular order: I'm going to share my journey from the very start of when things started changing until now. I'm going to share my experience with fibro, how it feels to me, and what interventions or therapies I've tried on my healing journey. I'm going to share the names of the practitioners I've learned from as well as their websites so you can look them up and work directly with them if you want to (most, if not all, of them work with patients around the world). I'm going to share what I've learned about using supplements as part of the treatment plans for fibro and CFS. I'm going to share what I've learned about the role our past - sometimes even from as far back as our early childhood - plays in our present and how nutrition, physical activity, psychological intervention, emotions, meditation, and sleep can contribute to the creation and the treatment of what we're living with.
I'm not a doctor or any other kind of medical practitioner. All I am is someone who is researching the heck out of something I'm living with and wanting to share what I've learned in the hope that I can help someone else. So, please, don't believe for one moment that what I'm sharing with you is meant to take the place of you getting appropriate medical advice.
My goal is to distill what I've learned into short posts so that you can use them as a starting point or guideposts for your own healing journey while also giving you the motivation to keep going. It's a long journey and we won't have our answers in a day. That doesn't mean we give up! We keep going! We take a break when we need it and then we get up and go again!
So, feel free to subscribe to this blog and/or my YouTube channel and share it with your friends and family and anyone else who is trying to help you along your journey.
One last thing: I don't know how often I'll be able to post for a few reasons, the main one being that fibro decided to visit my pinky fingers almost two months ago and although my right pinky is doing pretty fine, now, my left one still hurts from time to time and especially when I've spent what she considers to be too long typing on a keyboard ... how long is too long is an arbitrary measure ... she makes it up as she goes along. "Can't you type the posts on your phone?" I hear you ask. Not comfortably, no, because that sets of the fibro in my wrist and some of my other fingers.
I've learned to type with nine fingers 😂 ... it works for a little while. I've also used speech-to-text software but whatever ones I've tried don't get things right enough for it to be a useful alternative.
So, yeah, we're all at the mercy of my fibro pinky 😄
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